David is coming home.
I have tried to find a more gentle, sensitive way to share the latest in David’s fight with cancer, but the reality is that David is coming home tomorrow to begin hospice, surrounded by the love of his friends and family.
This last year has been unimaginable for us, and yet we are forever grateful and humbled by the outpouring of support you have shown. David has fought an incredible fight, and throughout it all maintained a determined, positive attitude that has inspired us all. By coming home, David is in no way giving up his hope for a miracle, rather he is choosing to spend this miracle of time with Izzy and Cap.
I can already hear Teamboyd’s calls to help, and I want to thank you in advance. We are not sure what these next few days and weeks will hold for us, but we know we’ll need your love and prayers.
We will be checking email and David’s facebook postings, but I will probably not be able to respond at this time. I have pulled in a few teamboyd members to help and ask that you email them if you need something. Truly your love overflows...
Monica Huff is organizing visitors. There may be days when David is up to seeing people and there will be others when we want to circle up as just a family. Know that we can feel your love even if we are not able to accept visitors. Please contact Monica (monicahuff@bellsouth.net) first if you are interested in stopping by and she can tell you when is a good time.
We are so grateful for the amazing food you have prepared for us this last year and will be using the same website again to coordinate meals. If you are interested, please log on to http://www.foodtidings.com/SignUp.aspx?ScheduleGuid=c7d9f36a-ce5a-4b69-a608-ddffeb07bc27 or contact Megan Lewis (megolewis@yahoo.com) to sign up.
For all other questions, please send Kim Ness an email (kimjness@yahoo.com). She will try to keep people updated through our teamboyd website and emails.
I know these next few days, weeks, will be some of the hardest we’ve ever faced, but as with this entire battle, we are taking it one step at a time. My parents, Kerry and David’s family are all here. Cap is feeling healthy and joyful as always. Izzy is remarkably brave and resilient. I am holding on...and will cherish every last minute I have with David.
Please continue to lift us up in your prayers.
Lisa
A blog made by the friends of David "Superman" Boyd who showed us what it is like to live life like a real hero! We will always look after your super family - Lisa, Izzie and Cap!
Friday, December 30, 2011
Saturday, December 3, 2011
Tebowing in Vegas
The Huff-Streiters & Company are in Vegas! Monica will be running a marathon that will mark her last state - yes, she's run one in every state!!!! They will be Tebowing all weekend...all for you Mr & Mrs Boyd!
Sunday, November 27, 2011
Giving Thanks
Dear Team Boyd,
The Boyd family is incredibly thankful for all of you and your love and support. We hope you had a wonderful Thanksgiving with your friends and family as did we. A big "thank you" to Brenda and Chuck Horton and their family for providing us with a delicious meal. And thank you to each of you who continue to travel to Northside to give blood and platelets. Your tireless generosity continues to amaze us.
Love,
Lisa
The Boyd family is incredibly thankful for all of you and your love and support. We hope you had a wonderful Thanksgiving with your friends and family as did we. A big "thank you" to Brenda and Chuck Horton and their family for providing us with a delicious meal. And thank you to each of you who continue to travel to Northside to give blood and platelets. Your tireless generosity continues to amaze us.
Love,
Lisa
Thursday, November 3, 2011
Update - November 3, 2011
Dear Team Boyd,
It hasn't been easy to formulate the words to update you on David's status. To write them down feels like giving power to them, and I just couldn't bring myself to do it. The fact of the matter is that we were told last week that the doctors estimate that David has a few weeks to a few months left. We find this prediction unacceptable. We are determined to prove them wrong.
We have been taking it one day at a time. David's spirits are good; he has been extremely feisty. I actually get to be the calm one these days. It's quite the role reversal.
David started a new chemo regimen today. He does not qualify for any clinical trials at the moment because of his low platelet count, but that's ok. His doctor is using a combination of drugs used in a trial at MD Anderson but he will add lots of blood products to support David's system. So basically we are getting cutting edge drugs, but David gets to stay in Atlanta. It's a win-win situation.
The children are doing well. Cap had a great first birthday and Izzy performed beautifully at her dance recital. They seem to be ignorantly blissful.
So what can you do to help? I heard today that Northside is in need of platelets again. If you have the time and energy, you can always donate. The meals we are getting are also a big help. I don't always know who will be at the house with the kids, but I know a hot meal is coming. The gas cards and grocery cards have been amazing. I'm tearing up the road going from Athens to Atlanta to Augusta. I actually traveled to all three cities in one 24 hour period two weeks ago. My gas was covered by your generosity. Most importantly, you can continue to pray and send positive thoughts our way.
Lastly, I want to send a special thank you to Whitney Freeman and all of her Barrow Buddy helpers who made the Family Dinner and a Movie Night at Locos such a success. Izzy and I both had a wonderful time and we are greatly touched by everyone's generosity. I have not done a very good job of thanking everyone and all of the special things each of you do for us. Please know that we are so thankful. Our cup runneth over.
Love,
Lisa
It hasn't been easy to formulate the words to update you on David's status. To write them down feels like giving power to them, and I just couldn't bring myself to do it. The fact of the matter is that we were told last week that the doctors estimate that David has a few weeks to a few months left. We find this prediction unacceptable. We are determined to prove them wrong.
We have been taking it one day at a time. David's spirits are good; he has been extremely feisty. I actually get to be the calm one these days. It's quite the role reversal.
David started a new chemo regimen today. He does not qualify for any clinical trials at the moment because of his low platelet count, but that's ok. His doctor is using a combination of drugs used in a trial at MD Anderson but he will add lots of blood products to support David's system. So basically we are getting cutting edge drugs, but David gets to stay in Atlanta. It's a win-win situation.
The children are doing well. Cap had a great first birthday and Izzy performed beautifully at her dance recital. They seem to be ignorantly blissful.
So what can you do to help? I heard today that Northside is in need of platelets again. If you have the time and energy, you can always donate. The meals we are getting are also a big help. I don't always know who will be at the house with the kids, but I know a hot meal is coming. The gas cards and grocery cards have been amazing. I'm tearing up the road going from Athens to Atlanta to Augusta. I actually traveled to all three cities in one 24 hour period two weeks ago. My gas was covered by your generosity. Most importantly, you can continue to pray and send positive thoughts our way.
Lastly, I want to send a special thank you to Whitney Freeman and all of her Barrow Buddy helpers who made the Family Dinner and a Movie Night at Locos such a success. Izzy and I both had a wonderful time and we are greatly touched by everyone's generosity. I have not done a very good job of thanking everyone and all of the special things each of you do for us. Please know that we are so thankful. Our cup runneth over.
Love,
Lisa
Tuesday, October 18, 2011
Sat, Oct. 22 Benefit!
As we lift up the Boyd family in our prayers, I wanted to tell you about a benefit night being planned here in Athens for Saturday, October 22nd at Loco's on Baxter. For $12, you get dinner (bbq burgers and dogs) and a movie (Charlotte's Web), both held outside in the Mooseyard. Not only will proceeds go straight to the Boyds, but it will also be a great chance for all those who love this amazing family to come together in a show of support. We would like to sell tickets in advance so we can give Loco's a heads up for dinner prep, but they may be purchased at the door if seats are still left. Included in the flyer is contact information for those of us selling tickets. Thank you for being part of teamboyd, I feel blessed to be surrounded by such faith and hope and love.
peace,
Kim Ness
kimjness@yahoo.com
peace,
Kim Ness
kimjness@yahoo.com
October 10, 2011 Update
Dear Team Boyd,
Over the last 48 hours the game plan for David's treatment has fluctuated, but we are finally settled. David did get to go home on Sunday and spend the day with Izzy, Cap, and me; sadly, I had to drive him back to the hospital this morning. The doctors decided it was imperative that David start chemotherapy right away.
The treatment involves 2 days of chemotherapy followed several days later by a DLI which is a boost of the stem cells previously harvested by his brother Wesley. We do not know the date of the boost, but we should find out more in the next couple of days.
As I write to you all, David is resting comfortably. He is exhausted; however, I did see a glimmer of fight back in his eyes and in his voice throughout the day. We are taking this fight one day at a time.
I'll be in touch,
Lisa
Over the last 48 hours the game plan for David's treatment has fluctuated, but we are finally settled. David did get to go home on Sunday and spend the day with Izzy, Cap, and me; sadly, I had to drive him back to the hospital this morning. The doctors decided it was imperative that David start chemotherapy right away.
The treatment involves 2 days of chemotherapy followed several days later by a DLI which is a boost of the stem cells previously harvested by his brother Wesley. We do not know the date of the boost, but we should find out more in the next couple of days.
As I write to you all, David is resting comfortably. He is exhausted; however, I did see a glimmer of fight back in his eyes and in his voice throughout the day. We are taking this fight one day at a time.
I'll be in touch,
Lisa
Saturday, October 8, 2011
Prayers Needed - Lisa's latest update
Dear Team Boyd,
I apologize for the gap in updates, but the little Boyds have been keeping me quite busy. Cap has become mobile and is so close to walking. For all you dancers out there, Izzy is shuffle-ball-changing all over the house, which I completely don't get. She'd rather dance to Swan Lake than kick a soccer ball...go figure.
As far as David, we are facing another mountain. The cancer is back, and we are facing a new set of challenges. David is coming home to Athens for a few days to refocus and tap into the well of energy of Izzy and Cap. He heads back to Northside on Tuesday night. The doctors are waiting on more test results, but we are one play closer to the "Northside-hell-mary-pass."We are in the process of reaching out to MD Anderson to tap into their clinical trials. It ain't over 'til it's over. We just want possible.
I'm on my way to get David and bring him home. Thank you for your love, prayers, and support.
Hugs,
Lisa
I apologize for the gap in updates, but the little Boyds have been keeping me quite busy. Cap has become mobile and is so close to walking. For all you dancers out there, Izzy is shuffle-ball-changing all over the house, which I completely don't get. She'd rather dance to Swan Lake than kick a soccer ball...go figure.
As far as David, we are facing another mountain. The cancer is back, and we are facing a new set of challenges. David is coming home to Athens for a few days to refocus and tap into the well of energy of Izzy and Cap. He heads back to Northside on Tuesday night. The doctors are waiting on more test results, but we are one play closer to the "Northside-hell-mary-pass."We are in the process of reaching out to MD Anderson to tap into their clinical trials. It ain't over 'til it's over. We just want possible.
I'm on my way to get David and bring him home. Thank you for your love, prayers, and support.
Hugs,
Lisa
Wednesday, September 7, 2011
Our Prayers Are Working...One Tough Bunch!
Dear Team Boyd,
Another crisis averted! Cap and I are home, and he is the picture of health. Along with my loyal sidekick Kerry, we have some new tools in our arsenal to combat his Hirschsprung's Disease. Each HD kid is different, and it takes trial and error to get the right balance of nutrition, medicine, and interventions (or as Izzy refers to it "suckin' out the poop!". Our family at MCG was amazing, and they once again have worked miracles.
Thank you to everyone who helped keep things running smoothly in Athens with meals, school, extra curricular activities, and plenty of love and support. Not to mention all the prayers! Thank you to all my hospital warriors who helped me get through each day and night at Chez MCG. Just having another person there made it bearable. Thank you also to our Barrow Elementary family who made it possible for me to see Izzy get her award for student of the month for kindness. It was a wonderful moment; thank you for that gift.
David is completing Day 12 tonight. Just 88 more days to go! He has his good days and his bad days. Today was a good day. He continues to walk or bike daily, and he is eating as well as he can when he can. Thank you to everyone who is taking care of him in my absence. It is comforting to know you are with him.
The children and I are planning to visit David this weekend. It will be the first time we have all been together since he left Athens on August 18. I will be in touch afterwards. Until then, continue the positive energy and prayers. It is working!
Cheers,
Lisa
Another crisis averted! Cap and I are home, and he is the picture of health. Along with my loyal sidekick Kerry, we have some new tools in our arsenal to combat his Hirschsprung's Disease. Each HD kid is different, and it takes trial and error to get the right balance of nutrition, medicine, and interventions (or as Izzy refers to it "suckin' out the poop!". Our family at MCG was amazing, and they once again have worked miracles.
Thank you to everyone who helped keep things running smoothly in Athens with meals, school, extra curricular activities, and plenty of love and support. Not to mention all the prayers! Thank you to all my hospital warriors who helped me get through each day and night at Chez MCG. Just having another person there made it bearable. Thank you also to our Barrow Elementary family who made it possible for me to see Izzy get her award for student of the month for kindness. It was a wonderful moment; thank you for that gift.
David is completing Day 12 tonight. Just 88 more days to go! He has his good days and his bad days. Today was a good day. He continues to walk or bike daily, and he is eating as well as he can when he can. Thank you to everyone who is taking care of him in my absence. It is comforting to know you are with him.
The children and I are planning to visit David this weekend. It will be the first time we have all been together since he left Athens on August 18. I will be in touch afterwards. Until then, continue the positive energy and prayers. It is working!
Cheers,
Lisa
Friday, September 2, 2011
Turning the corner...support, love and something more!
Hello Team Boyd,
We have had a surprisingly eventful week. However, as the weekend nears so does our capacity for healing. Cap was successfully taken off of the ventilator. 24 hours later, he is out of the ICU and in a regular room on the Pediatric floor. He is still being closely monitored, but in the doctor's words, "We have turned the corner." We will probably stay in the hospital about 3 to 5 more days if all continues to go well.
David is 7 days post transplant, and he is doing better than his doctors expected. He feels really yucky, but he knows he has to go through the pain to get to the healing. He continues to be brave and strong, and I can't wait to see him.
There are so many of you out there who are doing things for Team Boyd. I want to throw my arms around all of you and give you a tremendous hug, just like I did to the Critical Care doctor at MCG when he shared the news that we were leaving the PICU! The poor guy didn't know what hit him:) There is no way I could mention each and every one of you, and surely I would leave someone out. Please know that without you, we would not have made it through this week. As the wheels were coming off on Friday and Saturday, I continued to have a sense of peace and strength. Many people have asked me how I am doing and how I managed to not fall apart as I watched the doctors intubate my baby. My only answer is that a strength from somewhere other than me surrounded me and got me through. Thank you for surrounding my family with such a powerful love.
Many of you have answered the call to help, and you have risen to the challenge. David and I were speechless when the result of one little text message ended with the Blood Donation Center at Northside being inundated with donors for David Boyd. Truly, our cup runneth over.
Hugs, Hugs, and more Hugs,
Lisa
We have had a surprisingly eventful week. However, as the weekend nears so does our capacity for healing. Cap was successfully taken off of the ventilator. 24 hours later, he is out of the ICU and in a regular room on the Pediatric floor. He is still being closely monitored, but in the doctor's words, "We have turned the corner." We will probably stay in the hospital about 3 to 5 more days if all continues to go well.
David is 7 days post transplant, and he is doing better than his doctors expected. He feels really yucky, but he knows he has to go through the pain to get to the healing. He continues to be brave and strong, and I can't wait to see him.
There are so many of you out there who are doing things for Team Boyd. I want to throw my arms around all of you and give you a tremendous hug, just like I did to the Critical Care doctor at MCG when he shared the news that we were leaving the PICU! The poor guy didn't know what hit him:) There is no way I could mention each and every one of you, and surely I would leave someone out. Please know that without you, we would not have made it through this week. As the wheels were coming off on Friday and Saturday, I continued to have a sense of peace and strength. Many people have asked me how I am doing and how I managed to not fall apart as I watched the doctors intubate my baby. My only answer is that a strength from somewhere other than me surrounded me and got me through. Thank you for surrounding my family with such a powerful love.
Many of you have answered the call to help, and you have risen to the challenge. David and I were speechless when the result of one little text message ended with the Blood Donation Center at Northside being inundated with donors for David Boyd. Truly, our cup runneth over.
Hugs, Hugs, and more Hugs,
Lisa
Thursday, September 1, 2011
Team Boyd friends really do rock!
Dear Friends,
Thank you, thank you! Over the last several weeks 36 people have made donations to the Atlanta Blood Bank for David and many more are scheduled to donate between now and the end of next week. Due to medical privacy laws the Blood Bank can not give us the names of donors so we can write you a thank you for your donations, so they have agreed to send one for us. In the meantime please know that your are giving the gift of life to David and others suffering from blood born cancers like leukemia and lymphoma and that your donations are appreciated more than words can express.
Thanks for your prayers and concerns,
Sincerely,
Jack
Thank you, thank you! Over the last several weeks 36 people have made donations to the Atlanta Blood Bank for David and many more are scheduled to donate between now and the end of next week. Due to medical privacy laws the Blood Bank can not give us the names of donors so we can write you a thank you for your donations, so they have agreed to send one for us. In the meantime please know that your are giving the gift of life to David and others suffering from blood born cancers like leukemia and lymphoma and that your donations are appreciated more than words can express.
Thanks for your prayers and concerns,
Sincerely,
Jack
Monday, August 29, 2011
Aug 29th update on Cap & David...Give Blood!!!!
Dear Team Boyd,
We are holding strong. Cap had a very peaceful night. The doctors are slowly weaning him off of his medicines and discussing the possibility of weaning him off the ventilator throughout today and tomorrow. Even without being awake, Cap is stealing hearts:)
David is feeling the effects of the high dose chemo, radiation, and transplant. We knew this would wipe him out. Please keep him close to your heart as he finds the courage to persevere.
Lastly, I want to send a special thank you out to Wesley Boyd, David's youngest brother, who donated his stem cells. It was a more painful and lengthy process than anticipated. We appreciate his sacrifice and are so thankful for his generosity and love. Brotherly love is a wonderful thing.
Until next time,
Lisa
Dear Friends,
David, my son-in-law, has just completed 2 days of chemo blast and 4 days of twice daily full body radiation, followed by introduction of new bone marrow stem cells. At this point he is extremely susceptible to infections and bleeding and needs platelets daily and other blood components on a less frequent basis. If you or someone you know would like to donate platelets or blood we would be very grateful. Donations can be made at the Atlanta Blood Services offices in the Northside Hospital, Monday through Saturday, contact them at 404-459-8744 to make an appointment. Let them know that you are donating for David Boyd. FYI, platelet donations take about 2 hrs and they have a full library of movies you can watch while donating. Platelets can be donated as frequently as every 8 days. Thank you for all your prayers and support.
Sincerely,
Jack
We are holding strong. Cap had a very peaceful night. The doctors are slowly weaning him off of his medicines and discussing the possibility of weaning him off the ventilator throughout today and tomorrow. Even without being awake, Cap is stealing hearts:)
David is feeling the effects of the high dose chemo, radiation, and transplant. We knew this would wipe him out. Please keep him close to your heart as he finds the courage to persevere.
Lastly, I want to send a special thank you out to Wesley Boyd, David's youngest brother, who donated his stem cells. It was a more painful and lengthy process than anticipated. We appreciate his sacrifice and are so thankful for his generosity and love. Brotherly love is a wonderful thing.
Until next time,
Lisa
Dear Friends,
David, my son-in-law, has just completed 2 days of chemo blast and 4 days of twice daily full body radiation, followed by introduction of new bone marrow stem cells. At this point he is extremely susceptible to infections and bleeding and needs platelets daily and other blood components on a less frequent basis. If you or someone you know would like to donate platelets or blood we would be very grateful. Donations can be made at the Atlanta Blood Services offices in the Northside Hospital, Monday through Saturday, contact them at 404-459-8744 to make an appointment. Let them know that you are donating for David Boyd. FYI, platelet donations take about 2 hrs and they have a full library of movies you can watch while donating. Platelets can be donated as frequently as every 8 days. Thank you for all your prayers and support.
Sincerely,
Jack
Sunday, August 28, 2011
Cap Update...
Dear Team Boyd,
I have struggled whether to write this e-mail or not. You probably need to sit down before you continue reading.
Cap was admitted to the Pediatric ICU (PICU) last night. Around 2 AM he was struggling too hard to fight the infection and breathe plus the infection moved to his lungs causing pneumonia, so the doctors intubated him. He is sedated and finally resting comfortably. Since the time of intubation, his vital signs have continually improved. However, he will need to stay intubated for at least 48 hours to give the antibiotics time to work.
As for David, his heart is breaking. He feels so helpless since he cannot be here. I have a feeling he got as much sleep as I did last night. Physically he is doing fairly well, but as we are finding out attitude plays a huge role in the recovery process.
I will email with updates as I can.
Love,
Lisa
I have struggled whether to write this e-mail or not. You probably need to sit down before you continue reading.
Cap was admitted to the Pediatric ICU (PICU) last night. Around 2 AM he was struggling too hard to fight the infection and breathe plus the infection moved to his lungs causing pneumonia, so the doctors intubated him. He is sedated and finally resting comfortably. Since the time of intubation, his vital signs have continually improved. However, he will need to stay intubated for at least 48 hours to give the antibiotics time to work.
As for David, his heart is breaking. He feels so helpless since he cannot be here. I have a feeling he got as much sleep as I did last night. Physically he is doing fairly well, but as we are finding out attitude plays a huge role in the recovery process.
I will email with updates as I can.
Love,
Lisa
Saturday, August 27, 2011
Stem Cell Transplant Update
Dear Team Boyd,
As our very eventful week draws to a close, I want to share with you a brief description of what has transpired.
First, David completed his high-dose chemo and conquered that ugly infection. He also graduated from radiation; the doctor actually gave him a diploma and tassel after his four days of radiation treatment. He is experiencing some of the side effects, but he is taking it as he has taken everything so far, with a triumphant spirit.
The stem cell transplant was completed yesterday, and David slept through most of it (a bag of benadryl will do that to a person). He remained in the hospital last night as a result of low platelets and for observation. It may be a few more days before they release him.
Unfortunately, I was unable to be with David on his big day. Cap awoke with a fever and vomiting. With a temperature of 104.5 we headed to MCG. We were admitted and are here indefinitely. It has been a rough 24 hours, and that is pretty much how I look . . . and smell:( Cap's surgeons have run tests to rule out enterocolitus (that ugly Hirshsprung's infection) and complications from his surgery this past Tuesday. They think he has a nasty virus, but they are being careful with how they proceed.
Having been exposed to a possible virus, Izzy, Cap, and I will not be able to see David until we get the "all clear". As a result we have cancelled our weekend visit with our Daddy. Please pray for Izzy, especially, as she does not understand why things are so complicated. She just wants us all to be together, as we all do. David and I are trying to explain things to her, but we, too, are at a loss for explanations these days. I despise the saying "it is what it is," because it sounds so accepting of one's current situation. I want our children to understand that life is like a choose your own adventure novel: situations, good and bad, happen in everyone's life. However, it is how we choose to respond that creates our destiny.
Thank you for choosing to be positive, to be hopeful, to be supportive, and to be loving.
Much love,
Lisa
As our very eventful week draws to a close, I want to share with you a brief description of what has transpired.
First, David completed his high-dose chemo and conquered that ugly infection. He also graduated from radiation; the doctor actually gave him a diploma and tassel after his four days of radiation treatment. He is experiencing some of the side effects, but he is taking it as he has taken everything so far, with a triumphant spirit.
The stem cell transplant was completed yesterday, and David slept through most of it (a bag of benadryl will do that to a person). He remained in the hospital last night as a result of low platelets and for observation. It may be a few more days before they release him.
Unfortunately, I was unable to be with David on his big day. Cap awoke with a fever and vomiting. With a temperature of 104.5 we headed to MCG. We were admitted and are here indefinitely. It has been a rough 24 hours, and that is pretty much how I look . . . and smell:( Cap's surgeons have run tests to rule out enterocolitus (that ugly Hirshsprung's infection) and complications from his surgery this past Tuesday. They think he has a nasty virus, but they are being careful with how they proceed.
Having been exposed to a possible virus, Izzy, Cap, and I will not be able to see David until we get the "all clear". As a result we have cancelled our weekend visit with our Daddy. Please pray for Izzy, especially, as she does not understand why things are so complicated. She just wants us all to be together, as we all do. David and I are trying to explain things to her, but we, too, are at a loss for explanations these days. I despise the saying "it is what it is," because it sounds so accepting of one's current situation. I want our children to understand that life is like a choose your own adventure novel: situations, good and bad, happen in everyone's life. However, it is how we choose to respond that creates our destiny.
Thank you for choosing to be positive, to be hopeful, to be supportive, and to be loving.
Much love,
Lisa
Monday, August 22, 2011
Tough Road...
Hello Team Boyd,
This will be a quick update. David is fine, however he got very sick Saturday night--fever, vomiting. He has been admitted to Northside as an inpatient for the rest of the CITB (chemo and full body radiation preceding the transplant). He will stay in the hospital up until the day of the transplant. That is as far as we have right now.
We knew this was going to be a tough road; we just didn't expect it to happen so fast. David has an infection that they are fighting with antibiotics. They also are giving him medicine for the pain, so he is very groggy. He requested NO visitors at this time. He is very weak and fatigued. He is trying to rest as much as possible.
Thank you for your thoughts and prayers. I'll be in touch.
Best,
Lisa
This will be a quick update. David is fine, however he got very sick Saturday night--fever, vomiting. He has been admitted to Northside as an inpatient for the rest of the CITB (chemo and full body radiation preceding the transplant). He will stay in the hospital up until the day of the transplant. That is as far as we have right now.
We knew this was going to be a tough road; we just didn't expect it to happen so fast. David has an infection that they are fighting with antibiotics. They also are giving him medicine for the pain, so he is very groggy. He requested NO visitors at this time. He is very weak and fatigued. He is trying to rest as much as possible.
Thank you for your thoughts and prayers. I'll be in touch.
Best,
Lisa
Sunday, August 21, 2011
Working up to Aug. 26th Transplant
Dear Team Boyd,
We are so glad to have our feet back on terra firma and our confidence strengthened in our oncologists at Northside. As I write, David and I are driving back to Athens after a world-wind trip to Houston, Texas, to consult with the doctors at MD Anderson. Kings of Leon are singing on the radio in their Southern Rock style "it's in the water; where you came from . . . ." I can't help but feel that they are playing just for us. Our source of love and strength come from our home, our community. It is only fitting that the fight of our lives takes place here in Georgia.
We have been on information overload for 48 hours undergoing an intense course on Non-Hodgkins Diffuse B Cell Cancer on crack cocaine. We have been surrounded by sick people- really sick people-and we've heard some extremely abysmal cases. Yet here we are knowing in our hearts that we are not a lost cause. We are not even close to the end. Rest assured that David Boyd is still the healthiest looking sick person out there. And if you look good, isn't that what really matters?:)
So here's the plan. We are proceeding with the allogeneic stem cell transplant at Northside hospital. David will begin the process on Friday, August 19 with another line placement and prelabs. He will have two days of high dose chemo followed by 4 days of radiation twice a day. The transplant will occur on August 26, exactly 7 months after his initial diagnosis.
MD Anderson is not completely out of the picture. They are our Plan B if the transplant doesn't work. And let's face it, the transplant is going to work. Although the cancer is extremely aggressive, all of the doctors agree that David has his young age and overall health -sans cancer- on his side. If that doesn't work, then I'll nag the cancer out of his body; I'm really good at that.
As long as David is feeling and doing well, he will receive all of his treatments as an outpatient. Therefore he will be staying at a location to be determined later but before Friday. It's a work in progress. David's Mom will be his primary caregiver for that first week, and I will visit as much as I can. Cards and packages can be sent to our home address, and I will ensure that he gets everything. Once we have a specific location for him I will forward the address to you.
Izzy, Cap, and I will stay in Athens. School and dance classes are going well for Iz and Cap is sleeping like a champ in his own bed. I'm not messing with that chemistry right now. Plus, I have a triathlon to race, not really "race" but to finish without collapsing.
To say "thank you" at this point seems so small and insignificant. Instead, let me share that each night as I lie in bed waiting for sleep to overtake my anxious mind and heart, I humbly thank God for you.
Love,
Lisa
We are so glad to have our feet back on terra firma and our confidence strengthened in our oncologists at Northside. As I write, David and I are driving back to Athens after a world-wind trip to Houston, Texas, to consult with the doctors at MD Anderson. Kings of Leon are singing on the radio in their Southern Rock style "it's in the water; where you came from . . . ." I can't help but feel that they are playing just for us. Our source of love and strength come from our home, our community. It is only fitting that the fight of our lives takes place here in Georgia.
We have been on information overload for 48 hours undergoing an intense course on Non-Hodgkins Diffuse B Cell Cancer on crack cocaine. We have been surrounded by sick people- really sick people-and we've heard some extremely abysmal cases. Yet here we are knowing in our hearts that we are not a lost cause. We are not even close to the end. Rest assured that David Boyd is still the healthiest looking sick person out there. And if you look good, isn't that what really matters?:)
So here's the plan. We are proceeding with the allogeneic stem cell transplant at Northside hospital. David will begin the process on Friday, August 19 with another line placement and prelabs. He will have two days of high dose chemo followed by 4 days of radiation twice a day. The transplant will occur on August 26, exactly 7 months after his initial diagnosis.
MD Anderson is not completely out of the picture. They are our Plan B if the transplant doesn't work. And let's face it, the transplant is going to work. Although the cancer is extremely aggressive, all of the doctors agree that David has his young age and overall health -sans cancer- on his side. If that doesn't work, then I'll nag the cancer out of his body; I'm really good at that.
As long as David is feeling and doing well, he will receive all of his treatments as an outpatient. Therefore he will be staying at a location to be determined later but before Friday. It's a work in progress. David's Mom will be his primary caregiver for that first week, and I will visit as much as I can. Cards and packages can be sent to our home address, and I will ensure that he gets everything. Once we have a specific location for him I will forward the address to you.
Izzy, Cap, and I will stay in Athens. School and dance classes are going well for Iz and Cap is sleeping like a champ in his own bed. I'm not messing with that chemistry right now. Plus, I have a triathlon to race, not really "race" but to finish without collapsing.
To say "thank you" at this point seems so small and insignificant. Instead, let me share that each night as I lie in bed waiting for sleep to overtake my anxious mind and heart, I humbly thank God for you.
Love,
Lisa
Wednesday, August 3, 2011
David gives us an update!
Hello all-
It's David--I thought that I would give Lisa a break from her memoirs and give an update as to how TeamBoyd is doing. I know that I will not be as eloquent as she is but I will try my best!
Before anything I want to thank everyone for their support--whether it has been a call, an email/text/card --you will never fully know how much it has meant to me. They have helped me through some hard places and continue to keep my spirits high!! And a HUGE THANK YOU to my wife--I thank her each day but I wanted to publicly announce how awesome she is!! She is MY inspiration throughout this battle. If you know her--you know what I'm talking about--if you have yet to meet her--well she's kind of a big deal!!
I am back home after finishing what was my last round of RICE Chemo at Athens Regional and have started my attack on getting my body and mind ready for whats to come. I started riding the bike again (Lance Armstrong watch out) and soaking in a bath trying to rid myself of the toxins from the RICE. I will tell you that a warm bath after riding a bike in 100+ degree heat is not the idyllic scene one would imagine,but it is what it is. My appetite is good and we have been incredibly lucky to have had meals delivered that have spoiled us (thank you OPC and TEAMBOYD ). As expected my platelets have dropped down, and I am getting transfusions pretty much daily. This was to be expected and happened every other time but I rebounded and expect to this time as well.
Many of you have asked about what the next step is in beating this. Heres the game plan--
August 8 & 9 - going to Northside for a battery of tests--PET Scan, CT Sans, echo cardiograms, bone marrow biopsy and even a lumbar puncture--I know, I know--some guys have all the fun! I'll be back home after that for the week. On the home front, Izzy is starting kindergarten!
August 15- Educational Day--I imagine this will be reviewing what all is involved in the procedure, meds, follow up and I'm sure that we'll get the statistics and probabilities of this--I'll probably zone out like I did in High School because as Lisa said "we threw out probabilities and statistics a long time ago"...I'll snap out of that overload haze and only need to know the answer to one question--"Is this possible?"--that's all I need to know!!
August 20- I start my high dose of Chemo/ Radiation-- this will be in their clinic and I will be blasted with as much as they can give me. This is intended to get rid of all the cancer but unfortunately will also wipe out all of the "good stuff" in my body as well. I'll be apparently pretty puny (so they think! ) so that the new stem cells can do their thing.
August 26- I get the Stem Cell Transplant (thank you Wesley for taking the reigns on this and donating!) The procedure is apparently anti-climatic and like a simple blood transfusion. From this point on I will be an inpatient at Northside until my counts and body start to recover. Once they feel like I am responding then they will "release me back into the wild" somewhat. I will have to stay within shouting distance to their clinic and be going back everyday for up to 100 days (typical) for meds, blood and be monitored to see how my body is taking to the transplant.
Cancer has been compared to a Marathon --I think this is probably pretty true (seeing as I have never actually run a marathon) and I feel like I have been in training for what's to come. I know that we have the most incredible support team that has ever been assembled and that whatever comes our way we'll make it through it.
"I don't want easy...just possible"
With you guys by our side --ANYTHING is possible!!!!
GO TEAM BOYD!!
David
It's David--I thought that I would give Lisa a break from her memoirs and give an update as to how TeamBoyd is doing. I know that I will not be as eloquent as she is but I will try my best!
Before anything I want to thank everyone for their support--whether it has been a call, an email/text/card --you will never fully know how much it has meant to me. They have helped me through some hard places and continue to keep my spirits high!! And a HUGE THANK YOU to my wife--I thank her each day but I wanted to publicly announce how awesome she is!! She is MY inspiration throughout this battle. If you know her--you know what I'm talking about--if you have yet to meet her--well she's kind of a big deal!!
I am back home after finishing what was my last round of RICE Chemo at Athens Regional and have started my attack on getting my body and mind ready for whats to come. I started riding the bike again (Lance Armstrong watch out) and soaking in a bath trying to rid myself of the toxins from the RICE. I will tell you that a warm bath after riding a bike in 100+ degree heat is not the idyllic scene one would imagine,but it is what it is. My appetite is good and we have been incredibly lucky to have had meals delivered that have spoiled us (thank you OPC and TEAMBOYD ). As expected my platelets have dropped down, and I am getting transfusions pretty much daily. This was to be expected and happened every other time but I rebounded and expect to this time as well.
Many of you have asked about what the next step is in beating this. Heres the game plan--
August 8 & 9 - going to Northside for a battery of tests--PET Scan, CT Sans, echo cardiograms, bone marrow biopsy and even a lumbar puncture--I know, I know--some guys have all the fun! I'll be back home after that for the week. On the home front, Izzy is starting kindergarten!
August 15- Educational Day--I imagine this will be reviewing what all is involved in the procedure, meds, follow up and I'm sure that we'll get the statistics and probabilities of this--I'll probably zone out like I did in High School because as Lisa said "we threw out probabilities and statistics a long time ago"...I'll snap out of that overload haze and only need to know the answer to one question--"Is this possible?"--that's all I need to know!!
August 20- I start my high dose of Chemo/ Radiation-- this will be in their clinic and I will be blasted with as much as they can give me. This is intended to get rid of all the cancer but unfortunately will also wipe out all of the "good stuff" in my body as well. I'll be apparently pretty puny (so they think! ) so that the new stem cells can do their thing.
August 26- I get the Stem Cell Transplant (thank you Wesley for taking the reigns on this and donating!) The procedure is apparently anti-climatic and like a simple blood transfusion. From this point on I will be an inpatient at Northside until my counts and body start to recover. Once they feel like I am responding then they will "release me back into the wild" somewhat. I will have to stay within shouting distance to their clinic and be going back everyday for up to 100 days (typical) for meds, blood and be monitored to see how my body is taking to the transplant.
Cancer has been compared to a Marathon --I think this is probably pretty true (seeing as I have never actually run a marathon) and I feel like I have been in training for what's to come. I know that we have the most incredible support team that has ever been assembled and that whatever comes our way we'll make it through it.
"I don't want easy...just possible"
With you guys by our side --ANYTHING is possible!!!!
GO TEAM BOYD!!
David
Friday, July 22, 2011
The Marathon...
Dear Team Boyd,
David and I are in the car heading home from Northside Hospital. We met with our doctor and have been given an enormous amount of information. This e-mail will not be eloquent; I'm just going to put it all out there.
David has an extremely resistant lymphoma. While he has greatly improved since his initial admittance to Northside, he has not reached even a partial remission. However, his blood counts and organ function are strong at the moment. As a result, it looks like our best option is to proceed with an allogeneic bone marrow transplant. Allogeneic is a fancy word for a transplant from a donor. It is riskier but more effective in curing the disease than if they used his own bone marrow. I'm not going to give the percentages...we threw out probability and statistics several months ago. As David says, "Don't give me easy; just give me possible."
The time line will look a little something like this: first, David will get one more round of RICE chemo at Athens Regional starting Monday. Meanwhile, our doctors and coordinators at Northside will be preparing for the transplant. Two weeks after the RICE, David will go back to Northside to undergo all sorts of tests to make sure the transplant can happen. The donor, a player to be named later, will begin his process of having his stem cells harvested. By mid August, David will be admitted to Northside where he will receive a high dose of chemo to wipe out his system. Immediately afterwards he will get the transplant. On average, patients stay in the hospital 10 to 14 days. 30 to 100 days after, he will go to the Northside clinic daily. Therefore, he will have to stay in the Atlanta area while he is an outpatient. He will be on immune suppressant drugs for 6 months at the very least. He will have to avoid crowds and anyone with a hint of illness.
During the first 100 days, the doctors will be looking for signs of graft host disease where the transplant begins to reject David's body (here lies the major risk involved). The graft rejection can be treated as long as it is not overwhelming. Some rejection is expected and can even be a good thing in small doses early on. Graft host rejection could happen at anytime during the first year and sometimes into the second year.
With all that said, we are going to eat this elephant one bite at a time. Once we get dates I will sit down with my list makers and figure out what we need and when. This is going to be one long marathon, people. We need to rest up and grab some really good energy snacks.
As David and I continue to process all of the information and consider the incredible obstacle lying in front of us, we will continue to share our journey with you. At this time, the things we need right now that each of you can give are positive energy and the power of prayer.
Much love,
Lisa
David and I are in the car heading home from Northside Hospital. We met with our doctor and have been given an enormous amount of information. This e-mail will not be eloquent; I'm just going to put it all out there.
David has an extremely resistant lymphoma. While he has greatly improved since his initial admittance to Northside, he has not reached even a partial remission. However, his blood counts and organ function are strong at the moment. As a result, it looks like our best option is to proceed with an allogeneic bone marrow transplant. Allogeneic is a fancy word for a transplant from a donor. It is riskier but more effective in curing the disease than if they used his own bone marrow. I'm not going to give the percentages...we threw out probability and statistics several months ago. As David says, "Don't give me easy; just give me possible."
The time line will look a little something like this: first, David will get one more round of RICE chemo at Athens Regional starting Monday. Meanwhile, our doctors and coordinators at Northside will be preparing for the transplant. Two weeks after the RICE, David will go back to Northside to undergo all sorts of tests to make sure the transplant can happen. The donor, a player to be named later, will begin his process of having his stem cells harvested. By mid August, David will be admitted to Northside where he will receive a high dose of chemo to wipe out his system. Immediately afterwards he will get the transplant. On average, patients stay in the hospital 10 to 14 days. 30 to 100 days after, he will go to the Northside clinic daily. Therefore, he will have to stay in the Atlanta area while he is an outpatient. He will be on immune suppressant drugs for 6 months at the very least. He will have to avoid crowds and anyone with a hint of illness.
During the first 100 days, the doctors will be looking for signs of graft host disease where the transplant begins to reject David's body (here lies the major risk involved). The graft rejection can be treated as long as it is not overwhelming. Some rejection is expected and can even be a good thing in small doses early on. Graft host rejection could happen at anytime during the first year and sometimes into the second year.
With all that said, we are going to eat this elephant one bite at a time. Once we get dates I will sit down with my list makers and figure out what we need and when. This is going to be one long marathon, people. We need to rest up and grab some really good energy snacks.
As David and I continue to process all of the information and consider the incredible obstacle lying in front of us, we will continue to share our journey with you. At this time, the things we need right now that each of you can give are positive energy and the power of prayer.
Much love,
Lisa
Tuesday, July 12, 2011
Settling In
Dear Team Boyd,
All is quiet on the Athens' front. We are slowly finding our summer routine complete with doctors' visits, platelet counts, and swim team practice. We had a bit of a rough start, and I take full responsibility for that. I finally hit the proverbial wall and succumbed to lying in the fetal position with the covers over my head. With a lot of help from ALL of YOU, including my number 1 list maker Monica Huff, I have bent over, grabbed my ears, and pulled my head out of my . . . well, you know. As I keep telling Izzy, it's NOT time to cry yet.
David, on the other hand, is doing awesome! He looks great, is still exercising daily, and is eating well. He is using the weight loss as an excuse to eat a daily helping of Turtle Tracks ice cream. Yeah, I know, ladies, it must be nice.
David must still have his blood counts checked every other day, as well as have his PICC line flushed daily. His platelet counts have been low and he has received platelets twice over the last week, but that is to be expected at this point in his post chemo cycle. As for the PICC line flushing, the nurses taught me how to do it, so just add "nurse" to my list of winning attributes.
As for the next step in this journey, we get to spend one more week in Athens and then it is back to Northside Hospital on July 18 for a bone marrow biopsy and CT scan. Once we have the results, we will make the next set of treatment plans. We will also be meeting with David's team of doctors to discuss the bone marrow transplant. We received more good news when we found out that he not only has one bone marrow match but two! Philip, along with Wesley, is a perfect 10 match. How blessed are we! As for whose bone marrow we use, well, they can wrestle for it! Thank you guys for your selfless acts of brotherly love. Don't worry, Steven. We still love you, too!
As most of you know, Captain was born with spontaneous Hirschsprung's Disease and underwent major surgery in his first month of life. The healing process is slow and we still must do daily "management" until his body completely adjusts to having a portion of his intestines removed. Captain had a check up with his wonderful surgeons today, and they could not believe their eyes. My little nugget is not just managing but flourishing. In fact, he is doing so well that we get to start weaning him off of the daily "management" routine. Believe me when I say that is one stinky phase I will not miss.
As for Izzy, she is holding strong. However, she is starting to crack a little under the stress I know she senses even though we try so hard to shield her. Please say an extra prayer for her to have strength and courage. With our two high maintenance Boyd boys, I need her to stand strong with me:)
Lastly, I want to send a shout out to Philip Boyd, the owners and employees of South, and our West Coast family. There are no words to express how honored, humbled, and touched we are by your generous donations of time, talents, and gifts. If I could, I would hug you all. Thank you so much.
Until next time, assume no news is good news. We are resting up before the next big push.
Love and peace to you all,
Lisa
All is quiet on the Athens' front. We are slowly finding our summer routine complete with doctors' visits, platelet counts, and swim team practice. We had a bit of a rough start, and I take full responsibility for that. I finally hit the proverbial wall and succumbed to lying in the fetal position with the covers over my head. With a lot of help from ALL of YOU, including my number 1 list maker Monica Huff, I have bent over, grabbed my ears, and pulled my head out of my . . . well, you know. As I keep telling Izzy, it's NOT time to cry yet.
David, on the other hand, is doing awesome! He looks great, is still exercising daily, and is eating well. He is using the weight loss as an excuse to eat a daily helping of Turtle Tracks ice cream. Yeah, I know, ladies, it must be nice.
David must still have his blood counts checked every other day, as well as have his PICC line flushed daily. His platelet counts have been low and he has received platelets twice over the last week, but that is to be expected at this point in his post chemo cycle. As for the PICC line flushing, the nurses taught me how to do it, so just add "nurse" to my list of winning attributes.
As for the next step in this journey, we get to spend one more week in Athens and then it is back to Northside Hospital on July 18 for a bone marrow biopsy and CT scan. Once we have the results, we will make the next set of treatment plans. We will also be meeting with David's team of doctors to discuss the bone marrow transplant. We received more good news when we found out that he not only has one bone marrow match but two! Philip, along with Wesley, is a perfect 10 match. How blessed are we! As for whose bone marrow we use, well, they can wrestle for it! Thank you guys for your selfless acts of brotherly love. Don't worry, Steven. We still love you, too!
As most of you know, Captain was born with spontaneous Hirschsprung's Disease and underwent major surgery in his first month of life. The healing process is slow and we still must do daily "management" until his body completely adjusts to having a portion of his intestines removed. Captain had a check up with his wonderful surgeons today, and they could not believe their eyes. My little nugget is not just managing but flourishing. In fact, he is doing so well that we get to start weaning him off of the daily "management" routine. Believe me when I say that is one stinky phase I will not miss.
As for Izzy, she is holding strong. However, she is starting to crack a little under the stress I know she senses even though we try so hard to shield her. Please say an extra prayer for her to have strength and courage. With our two high maintenance Boyd boys, I need her to stand strong with me:)
Lastly, I want to send a shout out to Philip Boyd, the owners and employees of South, and our West Coast family. There are no words to express how honored, humbled, and touched we are by your generous donations of time, talents, and gifts. If I could, I would hug you all. Thank you so much.
Until next time, assume no news is good news. We are resting up before the next big push.
Love and peace to you all,
Lisa
Thursday, July 7, 2011
LATEST UPDATE FROM LISA!!!! ALSO, WORD ON THE STREET IS THAT MONICA HUFF IS COORDINATING MEALS, SO CONTACT HER IF YOU ARE LOCAL AND CAN VOLUNTEER. AND WOW, LOTS OF DONATIONS HAVE COME IN - I AM TRYING TO KEEP IT UPDATED AND JUST ADDED 18 NAMES! THESE TEAM BOYD LOVERS ARE AWESOME!!! THANKS EVERYONE, TEAM BOYD BLOGGER
Dear Team Boyd,
David is finally at home, for real this time, in our house in Athens, GA. He completed his second round of RICE chemo yesterday morning and spent most of the afternoon with Izzy and Cap. We are still taking it one day at a time for the next two weeks; David has to go to the hospital every day to have his PICC line flushed and blood counts tested. Depending on the results, he'll either stay for his blood products are go straight home. Nevertheless, if we can keep him well then he gets to spend each night in his own bed. At the end of the two weeks, we will head back to Northside Hospital for a CT Scan and bone marrow biopsy. The results of those two tests will determine our next course of action.
The kids and I have been spending the week getting settled in Athens. I want to give a special shout out to Kasi, Bobby, Evin, and Vail Carvell who made Izzy a part of their family for two days and nights. It was so helpful to know she was having a great time as I handled the chaos that insued on our first day back to town. Thank you also to Leslie, Chris, and Katherine Queen for having Izzy over on another day for fun, food, and adventure. Izzy is continuing to have a fun filled summer with her friends and extended family. She has spent today with her cousins Bree and Blair at the Atlanta Aquarium. Thank you Sheila, Steven, and Kendal for loving on our girl for us. David and I hope that she will remember this summer as the year she got to spend a lot of time making memories with family and friends-who-are-like-family.
I also must give a shout out to Kim Ness who has helped me work through the pains of getting Captain to sleep through the night. My little nugget really didn't need that 3 a.m. feeding. Thank you for offering encouragement and Ferber advice. I could not have done it also without my partner in crime, Kerry,who continues to get down in the trenches with me every day to take on the onslaught of craziness that is my life right now.
If you have been on the weloveteamboyd.com website lately then you have seen the flyer for the fundraiser on July 9th at South, a bar in Santa Monica, CA. Philip, one of David's brothers, is working tirelessly to organize the fundraiser for us. Philip is such a "doer" and it has been hard for him to be so far away while his big brother fights this disease. He has thrown himself into this event, and we appreciate all that Philip and his co-workers are doing for us. We are deeply touched by the outpouring of support from our friends and family out west. We wish we could join in the festivites. Thank you so much!
If I have not responded to your e-mail, call, or text I sincerely apologize. It has been crazy week after week, and I have been in survival mode. My hope is to find time soon to respond to each of you, but I don't know when that will be. I do apologize. I want to respond in a thoughtful way and thank you in a manner that is befitting all of your support. Please know that we do appreciate ALL you are doing, from the smallest hand squeeze and kind word said to the donations of your time and money. We are very blessed.
The Boyd Family wishes all of you a wonderful 4th of July weekend. Be safe, eat well, and stay cool!
Love,
Lisa
--
Dear Team Boyd,
David is finally at home, for real this time, in our house in Athens, GA. He completed his second round of RICE chemo yesterday morning and spent most of the afternoon with Izzy and Cap. We are still taking it one day at a time for the next two weeks; David has to go to the hospital every day to have his PICC line flushed and blood counts tested. Depending on the results, he'll either stay for his blood products are go straight home. Nevertheless, if we can keep him well then he gets to spend each night in his own bed. At the end of the two weeks, we will head back to Northside Hospital for a CT Scan and bone marrow biopsy. The results of those two tests will determine our next course of action.
The kids and I have been spending the week getting settled in Athens. I want to give a special shout out to Kasi, Bobby, Evin, and Vail Carvell who made Izzy a part of their family for two days and nights. It was so helpful to know she was having a great time as I handled the chaos that insued on our first day back to town. Thank you also to Leslie, Chris, and Katherine Queen for having Izzy over on another day for fun, food, and adventure. Izzy is continuing to have a fun filled summer with her friends and extended family. She has spent today with her cousins Bree and Blair at the Atlanta Aquarium. Thank you Sheila, Steven, and Kendal for loving on our girl for us. David and I hope that she will remember this summer as the year she got to spend a lot of time making memories with family and friends-who-are-like-family.
I also must give a shout out to Kim Ness who has helped me work through the pains of getting Captain to sleep through the night. My little nugget really didn't need that 3 a.m. feeding. Thank you for offering encouragement and Ferber advice. I could not have done it also without my partner in crime, Kerry,who continues to get down in the trenches with me every day to take on the onslaught of craziness that is my life right now.
If you have been on the weloveteamboyd.com website lately then you have seen the flyer for the fundraiser on July 9th at South, a bar in Santa Monica, CA. Philip, one of David's brothers, is working tirelessly to organize the fundraiser for us. Philip is such a "doer" and it has been hard for him to be so far away while his big brother fights this disease. He has thrown himself into this event, and we appreciate all that Philip and his co-workers are doing for us. We are deeply touched by the outpouring of support from our friends and family out west. We wish we could join in the festivites. Thank you so much!
If I have not responded to your e-mail, call, or text I sincerely apologize. It has been crazy week after week, and I have been in survival mode. My hope is to find time soon to respond to each of you, but I don't know when that will be. I do apologize. I want to respond in a thoughtful way and thank you in a manner that is befitting all of your support. Please know that we do appreciate ALL you are doing, from the smallest hand squeeze and kind word said to the donations of your time and money. We are very blessed.
The Boyd Family wishes all of you a wonderful 4th of July weekend. Be safe, eat well, and stay cool!
Love,
Lisa
--
Wednesday, June 29, 2011
Thank you's
Dear Team Boyd,
I wish I had the time right now to write each of you a heartfelt thank you for all you have done and all you are doing for our family. Until that day, this will have to do:
THANK YOU
Love,
Lisa
I wish I had the time right now to write each of you a heartfelt thank you for all you have done and all you are doing for our family. Until that day, this will have to do:
THANK YOU
Love,
Lisa
The Boyds are Back In ATHENS!!!
"Perpetual forward motion" is the mantra for the week. My good friend Mo sent that to me, and I like it! David is not cured, yet, but we are moving closer all the time.
On Monday afternoon, David's doctors at Northside decided they were comfortable with David receiving his next round of RICE chemo in Athens. I immediately started packing, and an hour and a half later the car was stuffed to the gills including the dog (yes, it's "dog" not "dogs". I had to put down my dog of 15 years. It's true. I couldn't make this stuff up.). We got to sleep in our own beds, and it was glorious. David started his RICE regimen as an inpatient at Athens Regional Hospital today, and he will be there four days. The plan, dare I put it in writing, is for him to come home after that.
We also received another bit of good news. David's youngest brother, Wesley, is a bone marrow match for David. He is a perfect 10 on the donor scale. Ladies, and he cooks and cleans! Seriously, he really is a chef! We are still awaiting the results on one more brother, and then the testing will be complete.
Thank you to Wesley and Sheila for helping us pack up, and also a big thank you to Ann, Bob, and Kerry for helping us on our return to Athens.
Lastly, to the person who stole my wallet today, I just want to say I hope you needed it more than I did. You may have my money, but I'm home, my husband is healing, and my kids are happy. Life is good.
Peace to your hearts,
Lisa
On Monday afternoon, David's doctors at Northside decided they were comfortable with David receiving his next round of RICE chemo in Athens. I immediately started packing, and an hour and a half later the car was stuffed to the gills including the dog (yes, it's "dog" not "dogs". I had to put down my dog of 15 years. It's true. I couldn't make this stuff up.). We got to sleep in our own beds, and it was glorious. David started his RICE regimen as an inpatient at Athens Regional Hospital today, and he will be there four days. The plan, dare I put it in writing, is for him to come home after that.
We also received another bit of good news. David's youngest brother, Wesley, is a bone marrow match for David. He is a perfect 10 on the donor scale. Ladies, and he cooks and cleans! Seriously, he really is a chef! We are still awaiting the results on one more brother, and then the testing will be complete.
Thank you to Wesley and Sheila for helping us pack up, and also a big thank you to Ann, Bob, and Kerry for helping us on our return to Athens.
Lastly, to the person who stole my wallet today, I just want to say I hope you needed it more than I did. You may have my money, but I'm home, my husband is healing, and my kids are happy. Life is good.
Peace to your hearts,
Lisa
Saturday, June 25, 2011
Great News!!!! End if Week 3
Good news! David has been discharged from the hospital and is staying at my parents' home in Conyers. We do not know how long he will be out, but we will enjoy it while it lasts.
(I will be ranting in the next paragraph, so if you just want important details, skip to the following paragraph)
Of course the universe, once again taught me a lesson that the best laid plans don't stand a chance against life. There I was, so excited about going home to Athens for a few days to recharge my mojo and feel the love. I had a training run with my buds that night. I had every detail planned... one of the gentlemen from church was meeting me at the house to help me unload and my Athens' mom had turned on the air conditioning in my house and bought me a few staples to get us through the weekend. My urban assault vehicle was packed to the hilt with baby gear, Izzy's entertainment, and triathlon training equipment. All that was missing were the children. I called David to let him know I was close to leaving, and wham! he says he's getting out. Now I admit that I did think twice before unpacking the car and calling my helpers. However, I slowly unpacked, pouted a few moments, and drank a beer--a big girl beer. Staying in Conyers and seeing David walk in the house was worth all the trouble. And as you know, that man can make quite an entrance. He still takes my breath away.
David still has to go to Northside every day for his labs, platelets, and other cocktail of drugs. The doctors are encouraged that his platelets are starting to increase and hold strong. He was at 12,000 platelets this morning all on his own. I'm so proud:). We are meeting with the doctors again on Monday, and it looks as if David will start his second round of RICE chemo on Tuesday. Yes, this is sooner than expected but the doctors feel that they can move more aggressively at the moment.
Although David is out of the hospital he still has to be very careful. We have to follow some precautions here at the house, and David must also avoid crowded places. He must also avoid anyone who has been ill or who has had contact with someone who has been sick. Therefore he will basically be at Northside and at the house in Conyers and that's it. He is not allowed to drive either. (As a side note, we will be getting a handicap placard for the car. I don't think we will be using it. Don't they know that David is actually Superman?)
As we find out more plans, I will pass them along. Thank you for your generous and unfaltering love and support surrounding us continuously. We could not do this without you, and we wouldn't even want to try.
Cheers,
Lisa
(I will be ranting in the next paragraph, so if you just want important details, skip to the following paragraph)
Of course the universe, once again taught me a lesson that the best laid plans don't stand a chance against life. There I was, so excited about going home to Athens for a few days to recharge my mojo and feel the love. I had a training run with my buds that night. I had every detail planned... one of the gentlemen from church was meeting me at the house to help me unload and my Athens' mom had turned on the air conditioning in my house and bought me a few staples to get us through the weekend. My urban assault vehicle was packed to the hilt with baby gear, Izzy's entertainment, and triathlon training equipment. All that was missing were the children. I called David to let him know I was close to leaving, and wham! he says he's getting out. Now I admit that I did think twice before unpacking the car and calling my helpers. However, I slowly unpacked, pouted a few moments, and drank a beer--a big girl beer. Staying in Conyers and seeing David walk in the house was worth all the trouble. And as you know, that man can make quite an entrance. He still takes my breath away.
David still has to go to Northside every day for his labs, platelets, and other cocktail of drugs. The doctors are encouraged that his platelets are starting to increase and hold strong. He was at 12,000 platelets this morning all on his own. I'm so proud:). We are meeting with the doctors again on Monday, and it looks as if David will start his second round of RICE chemo on Tuesday. Yes, this is sooner than expected but the doctors feel that they can move more aggressively at the moment.
Although David is out of the hospital he still has to be very careful. We have to follow some precautions here at the house, and David must also avoid crowded places. He must also avoid anyone who has been ill or who has had contact with someone who has been sick. Therefore he will basically be at Northside and at the house in Conyers and that's it. He is not allowed to drive either. (As a side note, we will be getting a handicap placard for the car. I don't think we will be using it. Don't they know that David is actually Superman?)
As we find out more plans, I will pass them along. Thank you for your generous and unfaltering love and support surrounding us continuously. We could not do this without you, and we wouldn't even want to try.
Cheers,
Lisa
Tuesday, June 21, 2011
WOW - How far David has come! DAYS 1-12 at Northside Hospital!
PRELUDE TO GOING TO NORTHSIDE HOSPITAL
Date: Tuesday, May 31, 2011, 9:01 PM
Date: Monday, June 6, 2011, 9:48 PM
Good evening,
It has been a long day, but David is settled into his room at Northside. I want everyone to know that I left the hospital tonight feeling really good about where he is. The nurses were on IT today, and his doctor is sharp. His entire team seems top notch! David is in the right place. That is step 1.
Step 2 is assessing his condition and the severity of the lymphoma. Many tests were run today, and more will be conducted tomorrow. The doctors want to know exactly to what extent the bone marrow is infected with the cancer, what other lymph node tumors have developed, and the severity of the damage to the liver. Only then can they determine the exact chemo to use against this resistent lymphoma.
Step 3 is to put the cancer into remission. They started the battle today by giving David platelets. He came this morning with a white blood cell count of 1000; they need to get him up to 20,000. They also started him on a strong oral steroid. He will hopefully start chemo on Wednesday.
The goal is to put the cancer into remission, or at least partial remission. Only then can they even consider giving David a bone marrow transplant. However, they have started figuring out what he will need and will begin looking for a match so we are ready to go when the time is right. I will let you know about finding a match once we meet with our coordinator this week.
I have a few requests. First, David is exhausted physically and emotionally. Talking on the phone is difficult right now. Texts and e-mails are easier for him to respond to at this time. Secondly, some of you have mentioned to us about setting up a blog or website. David does not want to do that at this time. He is still trying to work through this and is not ready to put it all our there. Thank you for understanding. I will keep you all in the know by sending out an e-mail once a day. Please forward it on to our relatives, friends, OPC family, and Barrow family.
Also, many of you want to visit David, which will be great, but now is not the time. I will let you know when he is ready. He is neutropenic and under strict guidelines. He can receive books, magazines, cards, balloons, and posters but all items must be wiped down with germicidal wipes before delivery to the patient. Please no fresh flowers or plants. They are not even allowed past the main doors of the unit. He is in room 469. Also do not send or bring him food. He is on a special neutropenic diet.
I know you all want to help, and you will have that chance, trust me. Right now we need everyone to pray really hard, stay positive, and cheer him on.
We have quite a battle in front of us. It will get worse before it gets better. We can do this, all of us together. We are taking it one day at a time, and today was a good day.
Love to you all,
Lisa
DAY 2
Dear Team Boyd,
We made great progress today. The steroids have already begun to work against the lymphoma in the liver! David's bilirubin level has significantly decreased. As a result, his color is looking less yellow and more normal.
Today's CT scan gave a better look at what is going on. David's lymph nodes are only slightly enlarged which is good. On the other hand there is definitely lymphoma in the spleen and more than likely in the liver. Only a liver biopsy will tell with certainty that the liver is infected, but the doctor feels that a biopsy is not a good idea at the moment.
David still has a very low platelet count at 1000 even after 3 bags of platelets. This is unusual. More tests are being run, but the doctor has two possibilities (not going into those right now); what's important is that the doctor believes that the problem can be rectified with steroids and rituxan (a chemo drug). Therefore in addition to the steroids, David started rituxan today.
The last bit of information we got this afternoon is that 1/3 of David's bone marrow is infected with the lymphoma. That means 2/3 of the cells in the bone marrow are healthy!
Many of you have asked about donating blood, platelets, and bone marrow. We are meeting with our coordinator on Thursday to discuss these options. I will be in touch after that. We are still trying to maneuver through the paper work and protocol here in this special hospital unit.
Thank you for all the e-mails and texts. They do help.
If you want to send cards, the address is
David Boyd-Room 469
C/O Northside Hospital
1000 Johnson Ferry Rd NE
Atlanta, GA 30342
I want to decorate his room with as much positive energy and love that I can. Pictures are great, too.
It was another good day, and we are another step closer to getting David well.
Cheers,
Lisa
DAY 3
It has been another busy day for David Boyd, and he has been a champ. The doctor gave him an A- which is good, but Team Boyd won't rest until we are at an A+.
No chemo was administered today, but David did continue with the steroids. Hopefully tomorrow his bilirubin will be low enough to continue the chemo.
Without going into too much detail, many more labs were run. Another bone marrow biopsy was performed as well. There has been a steady stream of nurses in and out all day. This team of physicians is thorough--I feel really good about that.
The not-so-good news is that David's platelet count is still low. It fluctuated today, but went back down to 2000.
The good news is that David felt better today even to the point that he got pretty feisty with the nurses and PA. Evidently he talked during the entire biopsy. I'm not sure what he said exactly but the PA was blushing when I saw her and said not to believe anything he said.
As far as tomorrow goes, David will have a PICC line placed first thing in the morning. We are crossing our fingers that he will be getting chemo, too.
Many of you have asked about the kids. Izzy and Cap are doing well. They are with my parents, and friends and family have been awesome at keeping them entertained. My dad has a saying: "You can't play without a partner." That's the truth! Keep them in your prayers.
Hugs to you all,
Lisa
DAY 4
Date: Thursday, June 9, 2011, 5:55 PM
Hello All,
Thank you for all the cards, pictures, care packages, and signs. Keep them coming. The room is looking great...positive energy every where! Some of you have asked about David's interests as you purchase magazines, etc. He loves sports, especially golf and football. He watches the Braves, too. His guilty pleasure is the MMA scene. It goes back to his wrestling roots:)
We had a few changes in today's schedule. The PICC line didn't happen, but the doctors will try again tomorrow. David's platelets are still too low plus he formed a large hematoma on the arm they were going to use. They ruled out blood clots with an extensive ultra sound and are keeping a watchful eye on it. In the meantime, he is undergoing a type of platelet therapy to see if he can't hold onto the platelets they give him each day. Also, he continued with chemotherapy. He received the I and C of the RICE regimen (for those of you who have asked about the cocktail the doctors are using). He gets blood every day, too. Lastly, he finished up his third consecutive day of IV steroids.
David continues to look better and better each day. His spirits are up and he's got that fire back in his eyes, and aren't they such handsome eyes?!
We will definitely be here for several more days, but the love and support you are sending help make it all manageable. Thank you for wrapping us in your loving embrace.
Hugs to you all,
Lisa
DAY 5
Happy Friday!
We've come a long way in only five days, and today was indicative of that improvement. David's platelete count went up to 12,000. The therapy is working! As a result he was able to get his PICC line this morning. David also continued his chemotherapy which will last throughout the night. This weekend will bring more of the same.
David is not getting much sleep as nurses and doctors steadily check on him all day. However he is able to sleep a little between the pokings and proddings. His appetite is back, too.
The best news that we received is that David can see the kids. They cannot come to the special unit, but we can set up a special location within the hospital. David is excited about seeing them, and I can't wait to tell Izzy tonight.
Cheers,
Lisa
DAY 6 & 7
Date: Sunday, June 12, 2011, 9:35 PM
Happy Weekend! There was no rest for the weary at Northside Hospital. David has been receiving extensive treatment non-stop around the clock. He will finish his last dose of chemo tonight for this initial regimen. Then we wait ...
Between bags of platelets, blood, and chemo David has had little time to rest, but he has been able to meet his personal goals each day. The biggest one is to walk 1 mile; of course he has surpassed the mark. He is such an over achiever!
David also had a wonderful visit with Izzy and Cap. I know it did David a world of good to see the kids and love on them. They needed it, too. He even was able to do a little parenting when Izzy tried to cheat during a heated game of Strawberry Shortcake Adventure. (She hates to lose; I have no idea where she gets that!)
It feels like we have lived a month in a week. It's hard to believe how far we have come in 7 days. Your thoughts, prayers, and words of encouragement are working. Bless you all.
Best,
Lisa
DAY 10
Date: Wednesday, June 15, 2011, 9:03 PM
Good Evening! It has been another good day for Team Boyd. David bragged that the doctor told him that he wished all his patients were like him. David is faithful to working toward his daily goals and doing whatever he can to heal. He emphasized to me tonight how much the cards and pictures you are sending really help keep him going. Thank you for that.
I did not make it to the hospital today; instead, I spent the day with the kids. However, David had wonderful visitors who he really enjoyed seeing.
I do have a few business updates. First, our good friends in Athens have created a Team Boyd blog. They are still trying to work out the kinks, but you might want to check it out at
www.weloveteamboyd.com. David and I are honored and deeply touched that our friends are pulling together in all sorts of ways to take care of us.
Secondly, we met with our blood and platelet donation coordinator at the hospital. You will begin hearing about opportunities to donate. Nelda Van Schoick, one of the powerhouse women at our church, has enthusiastically agreed to be our organizer. If you see her name on an e-mail, read it! Also, if you plan to visit, think about taking extra time to go to the inhouse clinic to donate blood or platelets before you leave:) FYI: Donating blood is fairly quick, but it takes 2 hours to give platelets.
For those of you who are out of state, I'm still working on that angle. I'll let you know soon.
Until tomorrow, much love to you all.
Hugs,
Lisa
DAY 12
It was a happy Friday! David continues to get stronger every day. His appetite is to the point that he has been requesting two breakfast trays of blueberry pancakes! His blood counts are still too low to send him home; however, they are slowly rising. I have to remind myself that this journey is a marathon, not a sprint.
David's spirit continues to be upbeat and positive even in the moments when fatigue sets in. He misses the children terribly, but he is looking forward to seeing them on Sunday. Our wonderful visitors continue to strengthen us both as well as your messages of support you continue to convey from across the miles.
Izzy and Cap are doing extremely well, and their happiness is a result of all of the wonderful people working tirelessly (well, maybe a little tired) to nurture them. Our situation right now has forced many people to step up and be caregivers along with me because I cannot do this by myself. My mom and dad are holding the fort down while I travel back and forth from the hospital daily. They have been on "high alert" since November 1--Cap's birthday--and I can't imagine what we would do without them. The BEST babysitter in the world, Kerry Nemetz, has followed us down to my parents' house and is doing her thing. She has quickly become my parents' favorite and the kiddos love her! (Back off Athens people; you can't call on her until we are in the clear!)
We are keeping Izzy's dance card full with lots of activities and not just with my parents and Kerry. She is spending time with David's mom and with my sister's family which includes 4 children. Izzy has thoroughly enjoyed being 1 of many, and my big sis has done a wonderful job of being loving but firm with our high spirited child.
David and I are truly blessed to be surrounded near and far with so much love. Supposedly one finds out who his true friends are during the lowest moments in life...our cup runneth over.
Bless you all,
Lisa
Date: Tuesday, May 31, 2011, 9:01 PM
Hello all,
It is Tuesday evening, and I have finally had a moment to sit down and let you all know what is going on. As most of you know, David has not been feeling well for over a week now. He was admitted to Athens Regional Hospital today. The doctors do not know exactly what is wrong, but they do know that his white blood cell count is extremely low, he is jaundice, and he has swelling and discomfort in his abdomen. They are giving him platelettes and fluids. They are also running a myriad of tests, as you can imagine, and we are in a holding pattern until they can figure it out.
My mom is here with me, my Dad is coming tomorrow afternoon, and Kerry, my sweet babysitter, has been helping today, too. We are just going to take it one day at a time. The kids are doing well; I'm going to try to keep them busy with summer activities. We will try to make it to Legion pool tomorrow, and Iz has swim team practice tomorrow evening. That is as far as I've gotten with plans.
David does not want visitors, but he could use some pick-me-up texts and e-mails. Phone calls work, too, but he has turned off his cell phone for the night so he can sleep...they have given him something to help with that. He is in room 2207 if you want to ignore his wishes and stop in and see him. Be aware however that he looks yellow. Even his eyeballs are yellow; it's a little weird.
Each of you have been so helpful throughout this whole experience, and I know you want to know what you can do now. Love and support are what we need. When I think of something I will let you know.
Love to you all,
Lisa
p.s. please pass along this information as you see fit...
DAY 1 AT NORTHSIDE HOSPITALIt is Tuesday evening, and I have finally had a moment to sit down and let you all know what is going on. As most of you know, David has not been feeling well for over a week now. He was admitted to Athens Regional Hospital today. The doctors do not know exactly what is wrong, but they do know that his white blood cell count is extremely low, he is jaundice, and he has swelling and discomfort in his abdomen. They are giving him platelettes and fluids. They are also running a myriad of tests, as you can imagine, and we are in a holding pattern until they can figure it out.
My mom is here with me, my Dad is coming tomorrow afternoon, and Kerry, my sweet babysitter, has been helping today, too. We are just going to take it one day at a time. The kids are doing well; I'm going to try to keep them busy with summer activities. We will try to make it to Legion pool tomorrow, and Iz has swim team practice tomorrow evening. That is as far as I've gotten with plans.
David does not want visitors, but he could use some pick-me-up texts and e-mails. Phone calls work, too, but he has turned off his cell phone for the night so he can sleep...they have given him something to help with that. He is in room 2207 if you want to ignore his wishes and stop in and see him. Be aware however that he looks yellow. Even his eyeballs are yellow; it's a little weird.
Each of you have been so helpful throughout this whole experience, and I know you want to know what you can do now. Love and support are what we need. When I think of something I will let you know.
Love to you all,
Lisa
p.s. please pass along this information as you see fit...
Date: Monday, June 6, 2011, 9:48 PM
Good evening,
It has been a long day, but David is settled into his room at Northside. I want everyone to know that I left the hospital tonight feeling really good about where he is. The nurses were on IT today, and his doctor is sharp. His entire team seems top notch! David is in the right place. That is step 1.
Step 2 is assessing his condition and the severity of the lymphoma. Many tests were run today, and more will be conducted tomorrow. The doctors want to know exactly to what extent the bone marrow is infected with the cancer, what other lymph node tumors have developed, and the severity of the damage to the liver. Only then can they determine the exact chemo to use against this resistent lymphoma.
Step 3 is to put the cancer into remission. They started the battle today by giving David platelets. He came this morning with a white blood cell count of 1000; they need to get him up to 20,000. They also started him on a strong oral steroid. He will hopefully start chemo on Wednesday.
The goal is to put the cancer into remission, or at least partial remission. Only then can they even consider giving David a bone marrow transplant. However, they have started figuring out what he will need and will begin looking for a match so we are ready to go when the time is right. I will let you know about finding a match once we meet with our coordinator this week.
I have a few requests. First, David is exhausted physically and emotionally. Talking on the phone is difficult right now. Texts and e-mails are easier for him to respond to at this time. Secondly, some of you have mentioned to us about setting up a blog or website. David does not want to do that at this time. He is still trying to work through this and is not ready to put it all our there. Thank you for understanding. I will keep you all in the know by sending out an e-mail once a day. Please forward it on to our relatives, friends, OPC family, and Barrow family.
Also, many of you want to visit David, which will be great, but now is not the time. I will let you know when he is ready. He is neutropenic and under strict guidelines. He can receive books, magazines, cards, balloons, and posters but all items must be wiped down with germicidal wipes before delivery to the patient. Please no fresh flowers or plants. They are not even allowed past the main doors of the unit. He is in room 469. Also do not send or bring him food. He is on a special neutropenic diet.
I know you all want to help, and you will have that chance, trust me. Right now we need everyone to pray really hard, stay positive, and cheer him on.
We have quite a battle in front of us. It will get worse before it gets better. We can do this, all of us together. We are taking it one day at a time, and today was a good day.
Love to you all,
Lisa
DAY 2
Dear Team Boyd,
We made great progress today. The steroids have already begun to work against the lymphoma in the liver! David's bilirubin level has significantly decreased. As a result, his color is looking less yellow and more normal.
Today's CT scan gave a better look at what is going on. David's lymph nodes are only slightly enlarged which is good. On the other hand there is definitely lymphoma in the spleen and more than likely in the liver. Only a liver biopsy will tell with certainty that the liver is infected, but the doctor feels that a biopsy is not a good idea at the moment.
David still has a very low platelet count at 1000 even after 3 bags of platelets. This is unusual. More tests are being run, but the doctor has two possibilities (not going into those right now); what's important is that the doctor believes that the problem can be rectified with steroids and rituxan (a chemo drug). Therefore in addition to the steroids, David started rituxan today.
The last bit of information we got this afternoon is that 1/3 of David's bone marrow is infected with the lymphoma. That means 2/3 of the cells in the bone marrow are healthy!
Many of you have asked about donating blood, platelets, and bone marrow. We are meeting with our coordinator on Thursday to discuss these options. I will be in touch after that. We are still trying to maneuver through the paper work and protocol here in this special hospital unit.
Thank you for all the e-mails and texts. They do help.
If you want to send cards, the address is
David Boyd-Room 469
C/O Northside Hospital
1000 Johnson Ferry Rd NE
Atlanta, GA 30342
I want to decorate his room with as much positive energy and love that I can. Pictures are great, too.
It was another good day, and we are another step closer to getting David well.
Cheers,
Lisa
DAY 3
It has been another busy day for David Boyd, and he has been a champ. The doctor gave him an A- which is good, but Team Boyd won't rest until we are at an A+.
No chemo was administered today, but David did continue with the steroids. Hopefully tomorrow his bilirubin will be low enough to continue the chemo.
Without going into too much detail, many more labs were run. Another bone marrow biopsy was performed as well. There has been a steady stream of nurses in and out all day. This team of physicians is thorough--I feel really good about that.
The not-so-good news is that David's platelet count is still low. It fluctuated today, but went back down to 2000.
The good news is that David felt better today even to the point that he got pretty feisty with the nurses and PA. Evidently he talked during the entire biopsy. I'm not sure what he said exactly but the PA was blushing when I saw her and said not to believe anything he said.
As far as tomorrow goes, David will have a PICC line placed first thing in the morning. We are crossing our fingers that he will be getting chemo, too.
Many of you have asked about the kids. Izzy and Cap are doing well. They are with my parents, and friends and family have been awesome at keeping them entertained. My dad has a saying: "You can't play without a partner." That's the truth! Keep them in your prayers.
Hugs to you all,
Lisa
DAY 4
Date: Thursday, June 9, 2011, 5:55 PM
Hello All,
Thank you for all the cards, pictures, care packages, and signs. Keep them coming. The room is looking great...positive energy every where! Some of you have asked about David's interests as you purchase magazines, etc. He loves sports, especially golf and football. He watches the Braves, too. His guilty pleasure is the MMA scene. It goes back to his wrestling roots:)
We had a few changes in today's schedule. The PICC line didn't happen, but the doctors will try again tomorrow. David's platelets are still too low plus he formed a large hematoma on the arm they were going to use. They ruled out blood clots with an extensive ultra sound and are keeping a watchful eye on it. In the meantime, he is undergoing a type of platelet therapy to see if he can't hold onto the platelets they give him each day. Also, he continued with chemotherapy. He received the I and C of the RICE regimen (for those of you who have asked about the cocktail the doctors are using). He gets blood every day, too. Lastly, he finished up his third consecutive day of IV steroids.
David continues to look better and better each day. His spirits are up and he's got that fire back in his eyes, and aren't they such handsome eyes?!
We will definitely be here for several more days, but the love and support you are sending help make it all manageable. Thank you for wrapping us in your loving embrace.
Hugs to you all,
Lisa
DAY 5
Happy Friday!
We've come a long way in only five days, and today was indicative of that improvement. David's platelete count went up to 12,000. The therapy is working! As a result he was able to get his PICC line this morning. David also continued his chemotherapy which will last throughout the night. This weekend will bring more of the same.
David is not getting much sleep as nurses and doctors steadily check on him all day. However he is able to sleep a little between the pokings and proddings. His appetite is back, too.
The best news that we received is that David can see the kids. They cannot come to the special unit, but we can set up a special location within the hospital. David is excited about seeing them, and I can't wait to tell Izzy tonight.
Cheers,
Lisa
DAY 6 & 7
Date: Sunday, June 12, 2011, 9:35 PM
Happy Weekend! There was no rest for the weary at Northside Hospital. David has been receiving extensive treatment non-stop around the clock. He will finish his last dose of chemo tonight for this initial regimen. Then we wait ...
Between bags of platelets, blood, and chemo David has had little time to rest, but he has been able to meet his personal goals each day. The biggest one is to walk 1 mile; of course he has surpassed the mark. He is such an over achiever!
David also had a wonderful visit with Izzy and Cap. I know it did David a world of good to see the kids and love on them. They needed it, too. He even was able to do a little parenting when Izzy tried to cheat during a heated game of Strawberry Shortcake Adventure. (She hates to lose; I have no idea where she gets that!)
It feels like we have lived a month in a week. It's hard to believe how far we have come in 7 days. Your thoughts, prayers, and words of encouragement are working. Bless you all.
Best,
Lisa
DAY 10
Date: Wednesday, June 15, 2011, 9:03 PM
Good Evening! It has been another good day for Team Boyd. David bragged that the doctor told him that he wished all his patients were like him. David is faithful to working toward his daily goals and doing whatever he can to heal. He emphasized to me tonight how much the cards and pictures you are sending really help keep him going. Thank you for that.
I did not make it to the hospital today; instead, I spent the day with the kids. However, David had wonderful visitors who he really enjoyed seeing.
I do have a few business updates. First, our good friends in Athens have created a Team Boyd blog. They are still trying to work out the kinks, but you might want to check it out at
www.weloveteamboyd.com. David and I are honored and deeply touched that our friends are pulling together in all sorts of ways to take care of us.
Secondly, we met with our blood and platelet donation coordinator at the hospital. You will begin hearing about opportunities to donate. Nelda Van Schoick, one of the powerhouse women at our church, has enthusiastically agreed to be our organizer. If you see her name on an e-mail, read it! Also, if you plan to visit, think about taking extra time to go to the inhouse clinic to donate blood or platelets before you leave:) FYI: Donating blood is fairly quick, but it takes 2 hours to give platelets.
For those of you who are out of state, I'm still working on that angle. I'll let you know soon.
Until tomorrow, much love to you all.
Hugs,
Lisa
DAY 12
It was a happy Friday! David continues to get stronger every day. His appetite is to the point that he has been requesting two breakfast trays of blueberry pancakes! His blood counts are still too low to send him home; however, they are slowly rising. I have to remind myself that this journey is a marathon, not a sprint.
David's spirit continues to be upbeat and positive even in the moments when fatigue sets in. He misses the children terribly, but he is looking forward to seeing them on Sunday. Our wonderful visitors continue to strengthen us both as well as your messages of support you continue to convey from across the miles.
Izzy and Cap are doing extremely well, and their happiness is a result of all of the wonderful people working tirelessly (well, maybe a little tired) to nurture them. Our situation right now has forced many people to step up and be caregivers along with me because I cannot do this by myself. My mom and dad are holding the fort down while I travel back and forth from the hospital daily. They have been on "high alert" since November 1--Cap's birthday--and I can't imagine what we would do without them. The BEST babysitter in the world, Kerry Nemetz, has followed us down to my parents' house and is doing her thing. She has quickly become my parents' favorite and the kiddos love her! (Back off Athens people; you can't call on her until we are in the clear!)
We are keeping Izzy's dance card full with lots of activities and not just with my parents and Kerry. She is spending time with David's mom and with my sister's family which includes 4 children. Izzy has thoroughly enjoyed being 1 of many, and my big sis has done a wonderful job of being loving but firm with our high spirited child.
David and I are truly blessed to be surrounded near and far with so much love. Supposedly one finds out who his true friends are during the lowest moments in life...our cup runneth over.
Bless you all,
Lisa
Thursday, June 16, 2011
Tri To Beat Cancer
Honoring David "Superman" Boyd
What: Sprint Triathlon (400 meter swim, 15 mile bike, 5K run)
Sunday, August 21st, 2011 @7am
Register quick, it sells out fast - www.cancerfoundationofnega.com
Honoring David "Superman" Boyd
What: Sprint Triathlon (400 meter swim, 15 mile bike, 5K run)
Sunday, August 21st, 2011 @7am
Register quick, it sells out fast - www.cancerfoundationofnega.com
When:
In 65 days
08/21/2011 7am
PLEASE WEAR A SUPERMAN SHIRT IF YOU ARE ON TEAM BOYD!
PLEASE WEAR A SUPERMAN SHIRT IF YOU ARE ON TEAM BOYD!
Where:
Sandy Creek Park in Athens
400 Bob Holman Rd Athens, GA 30607
400 Bob Holman Rd Athens, GA 30607
Tuesday, June 14, 2011
Monday, June 13, 2011
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